Patient Management - POCN's Rare Disease Center of Excellence

Patient Management

Hereditary ATTR Amyloidosis: From Genetic Diagnosis to Targeted Therapies

Hereditary ATTR amyloidosis is a genetic disorder caused by mutations in the transthyretin (TTR) gene, leading to the production of unstable TTR proteins that misfold and form amyloid...

CURATED BY: Tanya Geist,
RPA-C

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute

Patient Management Guidelines

Treating Myasthenia Gravis

UpToDate has a peer-reviewed article on the overview of treatments for myasthenia gravis.

Nursing Diagnosis and Care Plan

An article from Nurse Together, outlines the nursing process in assessing, treating, and educating patients with myasthenia gravis.

Management of Myasthenia Gravis

A panel of experts in myasthenia gravis (MG) updated the 2016 formal consensus-based guidelines in the management of MG according to the latest evidence-based literature.

Articles

New Guidelines for ATTRv Amyloidosis Stress Early Diagnosis and Treatment

Hereditary transthyretin (ATTRv) amyloidosis is a rare, fatal disease caused by mutations in the transthyretin (TTR) gene. The disease presents...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

Amyloid Neuropathy: Causes, Symptoms, and Treatments

Amyloid neuropathy, caused by insoluble amyloid deposits in the peripheral nervous system, primarily occurs in light-chain amyloidosis (AL) and hereditary...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

Multifocal Motor Neuropathy Patient Assistance Program

The National Organization for Rare Disorders (NORD) offers the Multifocal Motor Neuropathy Patient Assistance Program for those who have been...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

Ocular Myasthenia Gravis: Causes, Symptoms, and Treatments

Myasthenia gravis (MG) is a condition that causes muscle weakness due to the immune system interfering with acetylcholine receptors in...

Kelly Papesh,

DNP, APRN, FNP-C
Nurse Practitioner, Association of Movement Disorder APPs

CURATED BY:
Kelly Papesh,
DNP, APRN, FNP-C

Myasthenia Gravis Conference Spotlights Treatment Advances and More

The Proceedings of the 14th International Conference on Myasthenia Gravis and Myasthenic Disorders cover various facets of myasthenia gravis (MG),...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

Thymectomy and Myasthenia Gravis Patients

A retrospective, one-year case-control study was conducted in Pakistan that aimed to compare the odds of positive outcomes in myasthenia...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

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