Neurology Rare Disease Resources
Chosen by Advanced
Practice Providers
  • Clinical guidelines
  • Patient support and education resources
  • Research updates

Immune-Mediated Necrotizing Myopathies: Autoimmune Muscle Disorders with Uncertain Treatment Approaches

Immune-mediated necrotizing myopathies (IMNM) are autoimmune muscle disorders marked by proximal muscle weakness and elevated creatine kinase (CK) levels. These conditions may be linked to autoantibodies such as...
CURATED BY: Jerrica Farias,
MN, ARNP, PMHNP-BC
Picture of Jerrica R. Farias,
Jerrica R. Farias,
MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida
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Corticobasal Degeneration: A Progressive Disorder with Overlapping Symptoms and Limited Treatments

Corticobasal degeneration (CBD) is a progressive neurodegenerative disorder characterized by nerve cell loss and brain atrophy, often associated with abnormal...
Picture of Kelly Papesh,

Kelly Papesh,

DNP, APRN, FNP-C
Nurse Practitioner, Association of Movement Disorder APPs
CURATED BY:
Kelly Papesh,
DNP, APRN, FNP-C
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Systemic Amyloidoses: Protein Misfolding Disorders Causing Organ Dysfunction and Diagnostic Challenges

Systemic amyloidoses are protein misfolding disorders that cause amyloid deposits in organs like the heart, kidneys, and nervous system, leading...
Picture of Tanya Geist,

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute
CURATED BY:
Tanya Geist,
RPA-C
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Understanding Antibodies in Myasthenia Gravis is Key to Accurate Diagnosis and Personalized Treatment

Myasthenia gravis (MG) is an autoimmune disorder where antibodies target the neuromuscular junction, causing muscle weakness and fatigue. Affecting 40-180...
Picture of Tanya Geist,

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute
CURATED BY:
Tanya Geist,
RPA-C
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Physician Associate and Nurse Practitioner Contributors to the Neurology Rare Disease Center of Excellence

POCN’s Neurology Rare Disease Center of Excellence is curated by practicing clinical physician associates and nurse practitioners who review and select resources that are the most useful to their peers. They provide their expertise by hand-picking the latest content for advanced practice providers.

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