POCN's Rare Disease Center of Excellence - POCN's Rare Disease Center of Excellence

Neurology Rare Disease Resources
Chosen by Advanced
Practice Providers

Clinical guidelines
Patient support and education resources
Research updates

Diagnosing and Managing Chronic Inflammatory Demyelinating Polyneuropathy

Chronic inflammatory demyelinating polyneuropathy (CIDP) is an immune-mediated neuropathy that affects peripheral nerves and roots, with higher incidence in older males. Diagnosing CIDP is challenging due to its...

CURATED BY: Tanya Geist,
RPA-C

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute

Lambert-Eaton Myasthenic Syndrome Causing Muscle Weakness and Malignancies

Lambert-Eaton myasthenic syndrome (LEMS) is a rare autoimmune disorder affecting the neuromuscular junction, causing muscle weakness, reduced reflexes, and autonomic...

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute

CURATED BY:
Tanya Geist,
RPA-C

Early and Accurate Diagnosis Key to Managing Inflammatory Myopathies

Inflammatory myopathies (IM), also known as myositis, are rare autoimmune diseases that primarily affect skeletal muscles but can also involve...

Tanya Geist,

RPA-C
Physician Associate, DENT Neurologic Institute

CURATED BY:
Tanya Geist,
RPA-C

Molecular Therapies Offer New Hope for Myasthenia Gravis Treatment

Myasthenia gravis (MG) is an autoimmune disorder causing muscle weakness and fatigue due to antibodies targeting the acetylcholine receptor (AChR),...

Jerrica R. Farias,

MN, ARNP, PMHNP-BC
Nurse Practitioner, Associate Director of USF ALS Clinic at University of South Florida

CURATED BY:
Jerrica Farias,
MN, ARNP, PMHNP-BC

Physician Associate and Nurse Practitioner Contributors to the Neurology Rare Disease Center of Excellence

POCN’s Neurology Rare Disease Center of Excellence is curated by practicing clinical physician associates and nurse practitioners who review and select resources that are the most useful to their peers. They provide their expertise by hand-picking the latest content for advanced practice providers.